The latest round of OAT, stool and conventional “HIV” surrogate test markers are in, and the news is mostly good. Regardless of which angle one looks at these laboratory test results from, there is evidence to support an evolving thesis that a multi-faceted approach to immune dysfunction might be as efficacious as the current pharmaceutical-based guidelines for treating “HIV/AIDS”, minus the worst of the adverse effects. The not-so-good news is that the continuation of this seven year long experience (experiment?) is being jeopardized by the lack of financial resources. There, I said it, and I won’t mention it again until the end of this post.
Janine Roberts may well be my favorite investigative reporter on the topic of AIDS and HIV. She has published several books and produced documentary films, on topics ranging from Aboriginal resistance to British colonialism in Australia, to the shame of deBeers’ diamond mining operations in Africa.
Janine has also written the much more personal story about her life as a transgendered person—The Seven Days of My Creation: Tales of Magic and Gender.
The book that has most helped me form an alternative view about what the heck HIV might really be, and its role in the disease most people call AIDS is titled Fear of the Invisible.
In nearly every conversation I’ve had with Affecteds who are experimenting with ways to reduce the toxicity of antiretroviral (ARV) regimens, questions about “AIDS drug resistance” comes up. Resistance is often raised as a boogeyman in research trials of monotherapy and intermittent treatment options. While drug resistance—especially bacterial antibiotic resistance to staphylococcus or tuberculosis, for example—is increasingly a problem in modern medicine, one is unlikely to hear drug resistance discussed quite the way it is with AIDS. No other pathogen is described as “sneaky”, “clever”, or more mutable than HIV, despite the fact that retroviruses do not even meet most definitions for being a living entity, let alone have a brain.
Meanwhile, I have been fighting severe fatigue again, and that has led me back into that dark place called depression. I don’t want to write about that, of course. I want to write only about successes and victories. Twice last month I felt the onset of shingles in my left eye. The first time I was able to send it into remission quickly and with no evidence of an outbreak. The second time, the inflammation persisted for nearly two weeks, and I am only now feeling as if I might have kept it from erupting into a serious and disfiguring outbreak, like the one that hospitalized me in September, 2012.
Once again, the choice and the decisions are mine alone to make. I have an appointment to see a doctor I really liked at the Cancer Center of Kansas City, to get his opinion, and I will be having another blood draw for the confirmatory test.
Cancer risks aside, I am getting conflicting advice from various alternative healers about how I am dealing with chronic illness in general.
I am dumping a lot of summary information here, without getting into details, but I need to start somewhere. When I zoom out and look at the big picture, it is clear that I am still a long way from being a “healthy” person, and frankly, I no longer expect to become one. The goal now is to mange chronic disease and maintain as good a quality of life as I possibly can.
Gawd forbid this period of inactivity be mistaken as some sort of ill omen. What I can say is that I’m alive and doing well by most measures that matter. I am struggling with fatigue, and depression, which may help explain my absence online.
I quit the low-dose darunavir monotherapy on May 29, almost exactly one year after I had restarted ARVs. I am satisfied with, if not excited about the “numbers”, which I will update in a future post, along with additional news about my health and medical status.
“As he said hello I started to cry and cry. I could not believe it. I was given a second chance in life. This man is a great spiritual HIV/AIDS healer,his healing spell on aids healing is very powerfull. please brothers and sister, contact Dr HEROLD…” A new member of the […more]
One of the most vexing issues I’ve had to deal with since I started exploring alternatives to ART (antiretroviral therapy) for keeping my immune system as healthy as I can, is my inability to abide by some of the most basic rules of scientific research. I’m not beating myself up too much for this failure, […more]
As I spend time this week with one of my dearest friends, a man who has been HIV-positive since at least 1987, and who has been on ARVs almost continuously since 1990, I am reminded that Affecteds have always had the option to consider alternatives to conventional pharmaceutical treatment. Last night we recalled some of […more]