Insane. Me?

 Posted by on 2013-03-02 at 12:28 pm
Mar 022013
 
Insane. Me?

After meeting with my orthomolecular doctor last month to update him on my current status, and to discuss the goals I hope to accomplish this year, I found myself sitting in a chair in the laboratory draw station, waiting for Brad, the phlebotomist, to prepare all the paperwork necessary for the long list of tests […more]

Save Rico

 Posted by on 2013-02-28 at 9:49 am
Feb 282013
 
Save Rico

I am getting sicker by the minute, after reading a story of horrific abuse of power by the medical establishment that broke early this morning. Tragedy has stricken a newborn infant, being held in the hospital affiliated with the Mayo Clinic, in Rochester, Minnesota. A court ordered that Rico Martinez Nagel be removed from his […more]

AIDS Drug Treatment Guidelines: Deify or Defy?

 Posted by on 2013-02-04 at 12:06 am
Feb 042013
 
AIDS Drug Treatment Guidelines: Deify or Defy?

During our last office visit a couple of months ago, the infectious disease specialist I am now seeing repeatedly referred to “The Guidelines”, as if they were some kind of Holy Grail for treating her patients. The guidelines she was referring to are actually several documents, published by the U.S. Department of Health and Human […more]

Jan 312013
 
Just another tease

Here’s another short outtake from the pre-show walkthrough that John Grosso and I had in a G+ Hangout On Air (HOA) earlier this week for tomorrow evening’s Rainbow Show. Live stream begins at 7 pm CST.     Please drop in to view the show live, and ask questions via the comment stream on YouTube or Google+. The […more]

Hang out with me on Friday

 Posted by on 2013-01-30 at 2:12 pm
Jan 302013
 
Hang out with me on Friday

Remember when Google+ was launched more than a year ago to compete in the social networking arena with giants like Facebook? You don’t?  Well, you’re not alone. Despite our love/hate relationship with Facebook, few of us who had grown accustomed to that place could find the time and energy to embrace yet another site for […more]

97

 Posted by on 2012-05-07 at 12:02 pm
May 072012
 
97

97. That’s my latest CD4+ count, less than half the count from six weeks ago.

That’s it. I have tried as many alternative treatments as I can think of to reverse the decline. I will be starting my third round of pharmaceutical ARVs as soon as I can get a prescription and fill it.

This decision has been a long time coming, and in hindsight, I probably should have restarted a few months ago. There’s nothing magical about 97, or being below 100, but it’s as good a breaking point as any. I’ve long argued that there are two things to keep in mind about CD4 counts: one is the long-term trend; the other is single- or low double-digit counts.

Sunshine in the veins

 Posted by on 2012-05-02 at 9:54 am
May 022012
 
Sunshine in the veins

I first learned of ultraviolet blood irradiation (UBI) a few months ago from a mutual friend. UBI is also known as extracorporeal photopheresis (ECP) in the medical literature, and most recently BioPhotonic Therapy and Photoluminescent Therapy. Photopheresis been around for more than a century, and started gaining attention in medical circles as early as 1902. Like many alternative protocols, the spectacular success of antibiotics to fight battle field infections in WWII captured the hearts and minds of physicians and started the West’s love affair with pharmaceutical solutions to disease.

Today, as best as I can tell, UBI is approved by the FDA for only two purposes: cutaneous t-cell lymphoma and graft-vs-host disease. It’s use is far more widespread in Europe, Russia, China and South America for a variety of conditions, though it is currently being studied in the U.S. as an alternative treatment or adjunctive treatment for malignancies, auto-immune disorders, and yes, AIDS.

The F word

 Posted by on 2012-04-19 at 6:00 am
Apr 192012
 
The F word

Enough already with the critics and detractors. I haven’t been doing a very good job lately of keeping current with documenting my personal story, which was and is one of the primary purposes of this blog.

Despite the gruesome pictures from an earlier post, I am not currently experiencing any horribly disfiguring outbreaks, lumps or other obvious manifestations of poor health. The skin on my left leg has healed nicely and is completely intact, with no breaks, scabs or sores, for the first time in more than a year. The mystery lump on the right side of my face, under my jaw, has shrunk considerably, though I can still detect it. My smile is still crooked, due to what I assume is now permanent facial nerve damage resulting from Bell’s palsy. I also have a few persistent skin sores on my shoulders and back that are resisting healing.

I can fall asleep anywhere, anytime.

Other than these minor nuisances, my body seems fine, for the most part, and people who have known me for some time, assure me that I “look good”. What is not so obvious is the extreme fatigue (the F-word),